Banca de DEFESA: NAYARA DORNELA QUINTINO

Uma banca de DEFESA de DOUTORADO foi cadastrada pelo programa.
STUDENT : NAYARA DORNELA QUINTINO
DATE: 29/10/2020
TIME: 09:00
LOCAL: Videoconferência
TITLE:

ASSESSMENT OF QUALITY OF LIFE AND LITERACY IN HEALTH IN PATIENTS WITH CHAGAS DISEASE (COORTE SAMI-TROP)

KEY WORDS:

Quality of Life; Health Literacy; Chagas Disease.

PAGES: 132
BIG AREA: Ciências da Saúde
AREA: Saúde Coletiva
SUMMARY:

Objective: To assess quality of life (QOL) and health literacy (HL) and their association with sociodemographic, clinical, behavioral and health care aspects in patients with Chagas disease (CD). Method: This present doctoral thesis was developed in the SaMi-Trop cohort which was constituted in 2011-2012, composed of 1959 patients with positive CD serology, in a region with a high prevalence of chronic CD in Minas Gerais state. Baseline data collection was carried out in 2013-2014 and the first follow-up in 2015-2016. QOL was measured at both times using the WHOQOL-Bref scale. Health literacy (HL) was assessed only in the first follow-up, using the SAHLPA-18 scale. This thesis was divided into two parts, each part corresponding to a scientific article with independent objectives and analyzes: i) sectional study to assess the QOL profile among patients with CD and its association with sociodemographic, behavioral, and clinical characteristics; multivariate analysis using beta regression was used; and ii) cross-sectional study to assess the prevalence of HL and its association with sociodemographic and clinical characteristics, health care, and QOL in patients with CD. Patients who knew how to read were included for HL evaluation. Those who could not read were considered illiterate. Literate people responded to the SAHLPA-18 scale. The literacy variable was composed of three categories: 1) illiterate; 2) inadequate HL and; 3) adequate HL. Binary multinomial logistic regression and beta regression were used. Results: A lower QOL was identified in the Environment Domain followed by the Physical Domain, and a higher QOL was observed in the Social Relations Domain. The subjective perception of QOL was not associated with the severity of the disease using the presence of Chagas cardiomyopathy as a marker. There was a high prevalence of illiteracy and inadequate health literacy. Being illiterate is associated with worse QOL. Both are associated with worse clinical outcomes such as the use of more medication and the presence of Chagas cardiomyopathy with left ventricular dysfunction (LVD). Conclusion: The findings of this thesis reinforce the importance of quality of life and health literacy indicators for care planning, health communication, and clinical management of patients with CD living in remote regions, with low access to specialized health services.

BANKING MEMBERS:
Externa à Instituição - MARIA DO CARMO PEREIRA NUNES - UFMG
Externa à Instituição - LEA CAMPOS DE OLIVEIRA - USP
Presidente - 1715700 - CLARECI DA SILVA CARDOSO
Externa ao Programa - 1615288 - ELIETE ALBANO DE AZEVEDO GUIMARAES
Interna - 2059540 - ROBERTA CARVALHO DE FIGUEIREDO